Over the last several years various Tennessee PKU Foundation board members have joined efforts with our national affiliate the National PKU Alliance to champion the needs of the PKU community at the federal and local level. Our efforts include advocating in Washington D.C. with the Rare Disease Legislative Advocates during the Rare Disease Congressional Caucus, for issues such as the Medical Nutrition Equity Act and the Newborn Screening Saves Lives Reauthorization Act. If you are interested in taking part in our advocacy efforts, please contact:  Every voice counts!