Tennessee PKU Foundation

The mission of the Tennessee PKU Foundation is to provide support and education to individuals and families affected by PKU and similar metabolic disorders, raise community awareness, support PKU research, and promote the overall health and well-being of Tennesseans living with PKU and similar metabolic disorders.

What is PKU?

Phenylalanine & the Brain

PKU Is A Rare Disease

In the United States, there are roughly 16,500 people that have PKU. PKU affects between 1 in 10,000 and 1 in 20,000 depending on the country of origin.

PKU Diagnosis

PKU requires a medical diagnosis and, in the United States, is normally detected at birth as part of standard newborn screening process. PKU is a chronic disease and requires life long management.

PKU Treatment

There is no cure for PKU at this time. Treatment strategies include medical foods and formula, consistent lab testing, and strict low protein diet management with the support of a professional dietician and geneticist.

Our Work

See how fundraising efforts translate to real and tangible impact to those in our community living with metabolic disorders

View Our Work

The support & resources this community has provided for our family has been invaluable. We are forever grateful for the work being done here for both our son and for everyone else living with PKU.

Katie Turner

This Foundation is so important to us and the community that it helps!

Molly McDevitt

Our Events

View Our Upcoming Events
  • Nashville Zoo Event

  • 7/24/2021 - PKU Takes Over The Zoo
  • Memphis Zoo Event

  • Held Yearly (Spring) - Registration Links To Be Added Soon
  • Nashville Golf Tournament

  • Held Yearly (Fall) - Registration Links To Be Added Soon

Nashville Zoo Event

7/24/2021 - PKU Takes Over The Zoo Register Here

Memphis Zoo Event

Held Yearly (Spring) - Registration Links To Be Added Soon Find Out More

Nashville Golf Tournament

Held Yearly (Fall) - Registration Links To Be Added Soon Find Out More

Our Store

  • Donate
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    from $10.00
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  • PKU Takes Over The Zoo - Nashville - Adult Registration (Ages 12 & Above Without PKU)
    Regular price
    $45.00
    Sale price
    $45.00
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  • PKU Takes Over The Zoo - Nashville - Children Registration (Ages 3 - 12 Without PKU)
    Regular price
    $25.00
    Sale price
    $25.00
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Your Support Matters

PKU is considered an orphan disease. Because of its rarity, it has been a low priority for research and development. Recently, due to mostly private funding, there have been multiple advances in multiple therapeutics avenues that lead us to believe a cure will be found.

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